Hello everyone! I’ve finally made it around to updating my blog. A huge thank you to Michael for keeping everyone in the loop and updating it for me when I couldn’t. I have spent the past couple of days catching up on sleep and eating more real food. They put me on a liquid diet for a couple of days and today I had real food for the first time in days! It was glorious!
Recovery is going pretty smoothly. I have been up and walking and talking and starting to feel more like myself. We met with our new panel of doctors this afternoon and are set to start radiation and chemo later this week or early next week. Normally they wait 4-6 weeks to start radiation after having surgery but because Glioblastoma is so aggressive, the entire thing could grow back if we delay treatment. I also had my mask made today for radiation (it looks like it’s made out of Borats mesh underwear)! It helps the radiologist get the exact location to zap the tumor. We were so nervous to be coming here for treatment but after all the signs God sent us, we knew this is where we were being called to go! Our surgeon and nurse staff have been nothing short of amazing. I know that we are exactly where we are supposed to be right now.
The second photo is me prepping for (yet another) CT. This was my 7th scan in the past 3 weeks. SEVENTH. I’m so thankful I’m not claustrophobic! As much as I don’t like this situation, I’m so thankful that it has happened. It has helped my relationships with family members, friends, and even complete strangers. It just goes to show you that you have no idea what people have gone/are going through. So just be kind!
I’ll end tonight’s post on a funny story (or maybe it’s not funny, I just think it is lol). So last night after taking 6 pills and getting pumped with several drugs intreveniously, I was totally exhausted and honestly a little cray. I changed into my hospital gown and wore it over some of my Lula leggings and I was convinced that my hospital gown was a new Irma I bought (an Irma is a style of shirt). I kept asking Michael and my mom if they liked it because I loved the pattern 😂 It was cracking me up thinking about it today!
Thank you for all the continued prayers and support. We both feel so much hope and peace with what is going on and I just pray that we can keep these positive attitudes as we enter this new chapter of our lives.