I feel like I finally have a real update on my health! We met with my new neuro oncologist yesterday and talked about my current health and the plan moving forward. It was a seven hour appointment. That’s right, SEVEN HOURS. It was a little much but we got a lot of information so it wasn’t a waste of time. I ended up doing an MRI earlier than the post four weeks because we won’t be back there for a couple more months. The doctor said it’s hard to read MRIs so quickly after radiation because everything looks so swollen still. BUT the doctor said he was pleased with how it looked and he believes that it looks the same as the post op scan (maybe a little bigger but it could easily be scar tissue). The radiation oncologist still needs to review the new scan but I’m relieved to hear some “not bad news.”
Because my headaches have returned, they put me back on steroids (fourth times a charm?) The upside is that the steroids are only for the next 5 days and that’s it. So hopefully it will help with the pressure and headaches in the mean time and won’t be awful to get off of.
The biggest update I have is that I’ll be starting optune in the next week or so. What is optune? Here is the official definition: Optune is a wearable and portable, FDA-approved device that has been shown in clinical trials to safely deliver continuous therapy to the area of your brain where your GBM tumor is located.
So it’s great in the world of glioblastoma. But it doesn’t come without a catch. I (or most likely Michael) will be shaving my head every 3 days and wearing this fancy cap 24 hours a day for the foreseeable future. In no way am I excited about this but I’m thankful it exists and I’m hoping and praying it’s all worth it and that it works. It’s supposed to hit the cancer cells, stunt the growth, and kill them.
I’m anxious about this next chapter, even though I’ve tried to prepare myself for it mentally. But I don’t know if anything will be able to prepare me for the looks and the questions and the night we actually have to shave it. It’s just hair and it will be fine, it’s just going to be an adjustment. But I will do everything in my power to be here for my family, even if I have to look like an alien. I know Sarah will have questions and even though he is so sweet about it, I know that Michael probably won’t ENJOY shaving his wife’s head so please pray that it goes smoothly and that we all learn to accept this new normal quickly.