I often forget just how bad this situation is. “This situation” is me referring to my health. I just see Jesus in all of it so it’s hard to be sad all the time. Which is why I choose to smile, even if it’s me smiling as I’m choking back tears. Also, I’m such an ugly crier and no one needs to see that.
The past few days have been some good for the soul days. Michael and I had a night away to FINALLY celebrate our anniversary. I was only a month late finishing his gift this year haha. But we got a nice hotel for the night and went out to eat. The hotel even upgraded us to a two floor suite!! It was so beautiful, so relaxing, and so needed. I have seen Michael so much and I’m so thankful he can be with me but we haven’t spent much time together. Everything is cancer talk and logistics. It’s hard to stay connected through all the craziness so a night away together was just what the doctor ordered!
Yesterday was a feel good day as a family. We all went to Disney for the day and it was so much fun! It’s the first time Sarah or I had seen the fireworks and I have to say, they were pretty fantastic. It was super hot out but we all made it (very thankful I didn’t have my optune on because of the rain and the sun!) Cool story time. The monorail was closed to get from our hotel to the park (if you don’t know what the monorail is, it’s a shuttle like train in the sky..you know, cool Disney stuff). The worker told us we would have to walk or take the bus. My hips still hurt a lot when I walk so the thought of having to walk it all made me cringe. Then all of a sudden the worker got the call that the monorail was up and running! Then I noticed the workers name tag: Rafael. People, that is NOT a common name. But he was looking out for me and knew that riding would be better for me!
Many people have asked me how I’m doing with the new treatments. Overall they are going well. I’m battling nausea again and food has become difficult for me but I’m praying I can get it all under control. I feel worse when I stay busy so I’m paying for it today. But it was worth it. 100% worth it. We also had some “pixie dust” sprinkled on our reservation and were upgraded again to a castle view room. It was so nice. People are just so nice. One other thing that I forgot to mention about myself (or I wrote it and forgot) is that I have lost feeling in my right thumb, index finger and part of my hand. It’s more annoying than anything. Especially when I’m trying to text, type, or make bracelets.