One step forward, two steps back

     Up and down and up and down…and down. This past week has been my roughest yet. I haven’t been able to eat or even take medicine without getting sick coming up on a week now. Not to mention the middle of the night “awake time” that my body has instated. I’m usually up for about 3-5 hours. It’s miserable. I’ve lost so much weight, about 30 pounds total now. So it’s not good. I’m starting to look like a cancer patient, you know, weak, pale, puking all the time. The stereotypical cancer patient. I don’t like it, but this is the cross that I must bare.  
     I had no idea that chemo could come in so many shapes and sizes, not to mention the length of time people have to get infusions of chemo. It ranges anywhere from a pill to getting chemo through a port for 10 hours each time they go in. TEN HOURS. Counting my blessings there. 
     Last week, while waiting for them to call me back for my chemo to the brain, I ran into an elderly woman and her daughter. The woman has a GBM (same cancer as I do) and was there to discuss optune with her doctor, even though she had decided not to do it. So she immediately started picking my brain (which is great because I love to share my experiences, especially if it can help someone else). Long story short, after just talking with me about it for 3 minutes, she had a change of heart. Optune works and although it’s not a permanent solution and it looks like an alien cap, I’m so thankful I am able to use it. It’s humbling to walk around with this crazy thing and get all the stares. 
     I’ll end on something positive! We were gifted with tickets to go to universal (so fun to watch the kids play!) and had a blast. I didn’t get to stay as long as I hoped but I lasted longer than anyone thought I would! Plus, I got to take optune off for the day because of the rain and heat. Not a great combo! Also, notice how my optune now has its own hat! Fancy, I know.