I know everyone’s been wondering how things have been, and the simple answer is not good. Stephanie’s symptoms have gotten worse. She’s no longer eating or drinking. They did a test and ruled out a seizure, but she’s almost constantly very shaky. She hasn’t opened her eyes in a couple of days even when she’s “awake”, and she doesn’t speak much. When she does it’s usually either jibberish or completely off the wall random. We’re doing our best to keep her comfortable, which is hard when we don’t know if she’s hot or cold, in pain or not. But we’re taking it a day at a time and continuing to prayer for a miracle.
We celebrated Sarah’s birthday on Tuesday, and Stephanie, while tired, was still functioning well enough at that point when she wasn’t sleeping to interact and enjoy the day with Sarah, watching her open presents and play.
One recurring theme through this journey has been our appreciation of the wonderful nurses we’ve had. From Becca in Oklahoma to Katie, Allison, Taylor, Sidney, Jenna, Steph, Kylen, and so many others here the last couple of weeks, they’ve taken good care of Stephanie throughout her journey. And for that we’d like to say thank you.